Saturday 8 September 2012
Final update 8th Sep 2012
The long fought battle is over. Rishi, our mighty warrior has succumbed to his fatal disease. Cancer sees yet another prey and we lose our most beloved child. It is shaking, it is unbelievable, the end has come.
Since 1 AM, early morning, Rishi's oxygen consumption through the ventilator shot upto to 100% when the doctors realized that the stage has come when only a miracle could save him. His heart was still beating and he was put on stronger dose of medicines to keep the heart at pace. Later in the morning at around 10 AM the medicines also stopped giving results. Rishi was certainly losing it soon. At approximately 2 PM, Rishi was declared dead.
Rishi leaves his father, mother, younger sister to live on with his dreams.
He wished to become a pilot and loved cricket. Full of fun, he kept telling his sister.. "there is nobody than me for you..don't fight with me"
May your soul rest in peace, Rishi!
Do know that you were loved by many.. many who never met you.. but prayed for you.. extended monetary help.. gave time for your recovery and supported you through out your journey.
We thank you all, each one of you, who have worked with us for this cause. Thank you for your unconditional support, lovely hearts. The expenses at the hospital have been covered. We have a corpus remaining which we shall be using for Rishi's family's welfare, loan repayments, and closing out the house mortagage.
Love you tons Rishi!
Sleep well..
Friday 7 September 2012
Latest update 7th Sept 2012
The last 48 hours have been very discouraging. Rishi has not shown as significant an improvement as we all would have liked. The prayers have taken an upswing like never before. The doctors are buzzing around providing 24x7 attention to Rishi without a wink. But Rishi is not responding to medicines at all. His heart rate, blood pressure is normal, sugar levels are relatively lowered, but his poor immune system is failing to take help of medicines and battle the fungal infection. The anti-fungal medicines, GVH medicines are on regular dosage.
Rishi has developed cerebral edema that causes his brain to swell. The symptoms are clear and effects of it are unnerving. Rishi had a cardiac arrest yesterday after which his heart stopped beating for a few seconds. He was revived by CPU. Though stable, Rishi has not regained consciousness. It is very important that he makes out of the COMAtose phase as soon as possible in order to proceed with the further mode of treatment. Rishi is showing signs of white eyes which could indicate that the fungal infection is not in control and is spreading faster than we can fathom. The last CT scan conducted 3 days ago did not show any signs of such infection. Doctors are unable to perform any tests in this state. The surgery performed 5 days ago ensured that the infection was cleaned from his forehead and upper cheekbones areas. But the bad cells intrinsic to Rishi's system, are not being killed. The medicines are not showing any response. In 80% of the cancer cases, these medicines are adminstered under such cases with successful results.
It is shocking to see how a boy, completely fit 15 days ago has his health deteriorated so fast. Rishi spoke to us 15 days ago and placed an order for liver count medicines as he usually does every month on doctor;s prescription. Today, I would love to hear him once again. Open your eyes, Rishi, give that one smile we are all waiting for. Rishi had such a wonderful 1 full year go by with no complaints / complications whatsoever post his bone marrow transplant. Rishi you have fought worse battles in the past.. this one is relatively less demanding.. defeat it Rishi, make it happen, Rishi! Get up! Please!
Our focus has shifted to prayers alone. God is the savior. He needs to give Rishi and his parents more than ample strength to fight this through. We all are with you, Rishi. We are calling out to you! Please please please wake up!
I cannot relate to Rishi's parents who are still putting up a strong heart. They break down the minute they find support. Rishi is family to us, unsaid. We feel the pain as much as his own relatives. The entire Sarafdar family is at the hospital constantly offering help, time and seeking blessings from the almighty for Rishi.
Today, we ask, all of you to keep Rishi in your prayers. Give all your positive energies to this young boy to fight as hard as he can. Pray to the lord that he brings him out of this phase very very soon. And make this his last struggle to fight in his very very long and big life.
Rishi has developed cerebral edema that causes his brain to swell. The symptoms are clear and effects of it are unnerving. Rishi had a cardiac arrest yesterday after which his heart stopped beating for a few seconds. He was revived by CPU. Though stable, Rishi has not regained consciousness. It is very important that he makes out of the COMAtose phase as soon as possible in order to proceed with the further mode of treatment. Rishi is showing signs of white eyes which could indicate that the fungal infection is not in control and is spreading faster than we can fathom. The last CT scan conducted 3 days ago did not show any signs of such infection. Doctors are unable to perform any tests in this state. The surgery performed 5 days ago ensured that the infection was cleaned from his forehead and upper cheekbones areas. But the bad cells intrinsic to Rishi's system, are not being killed. The medicines are not showing any response. In 80% of the cancer cases, these medicines are adminstered under such cases with successful results.
It is shocking to see how a boy, completely fit 15 days ago has his health deteriorated so fast. Rishi spoke to us 15 days ago and placed an order for liver count medicines as he usually does every month on doctor;s prescription. Today, I would love to hear him once again. Open your eyes, Rishi, give that one smile we are all waiting for. Rishi had such a wonderful 1 full year go by with no complaints / complications whatsoever post his bone marrow transplant. Rishi you have fought worse battles in the past.. this one is relatively less demanding.. defeat it Rishi, make it happen, Rishi! Get up! Please!
Our focus has shifted to prayers alone. God is the savior. He needs to give Rishi and his parents more than ample strength to fight this through. We all are with you, Rishi. We are calling out to you! Please please please wake up!
I cannot relate to Rishi's parents who are still putting up a strong heart. They break down the minute they find support. Rishi is family to us, unsaid. We feel the pain as much as his own relatives. The entire Sarafdar family is at the hospital constantly offering help, time and seeking blessings from the almighty for Rishi.
Today, we ask, all of you to keep Rishi in your prayers. Give all your positive energies to this young boy to fight as hard as he can. Pray to the lord that he brings him out of this phase very very soon. And make this his last struggle to fight in his very very long and big life.
Wednesday 5 September 2012
Latest update 5th Sept 2012 (expense summary)
Expenses update as on today:
1. Medical bills for 29th Aug - 5th Sept: Rs. 2,30,000 (click here to see bill for 2 days)
2. Cost of surgery: Rs. 1,20,000 (click here to see estimate)
Actual bill is yet to be procured from hospital, delay apologized
3. Estimated cost of hospitalization until 12th Sept 2012: Rs. 1,50,000 (estimated)
Total: 5,00,000
---------------------- ---------------------- ----------------------
Cash available:
1. Rishi's savings from previous donations: Rs. 1,00,000
2. Rishi's father's savings Rs. 50,000
3. Jeevandayi savings from previous disbursement: Rs. 50,000
4. Expected donations as on 2nd Sept 2012: Rs. 28,000
Total: 2,28,000
Deficit: Rs. 2,72,000
---------------------- ---------------------- ----------------------
Appeal to All Donors,
Please note that ideally we would like if Rishi's father does not have to touch his savings
He still needs to feed his family of four, and needs money for day to day expenses
Hence we would like if we can generate donations close to Rs. 3,50,000
Also, note that a big component #3 in expenses is only an estimate, this can go up
We encourage all donors to transfer the amount as mentioned on this page
It helps us to keep track of all money coming in and going out and control disbursements
All documents shall be furnished as soon as we procure them
Thank you!
Latest update 5th Sept 2012
Rishi is very slightly better than he was yesterday. His blood counts are all normal now. His heart rate and pressure is also nearly under control. He is not completely conscious yet, though he is responding to simple instructions like - hold my hand , Let go of my hand-
His sugar levels are still quite high . Insulin is being administered for the same.
Due to the sedation and the dressing on the nose, he could not open his eyes and be fully conscious.
Doctors still don't say he is doing great or fine but they say he is much much better than yesterday and is showing signs of recovery...
His father sounded much better today than he did yesterday when we spoke to him and it was as if he had a renewed sense of energy within him...may god bless them and give them all the strength and courage that is needed to fight this...
We did not have the heart to write that yesterday Rishi was sinking ; but our little warrior is going to fight this and he has an entire army with him, even God cannot refuse.
The doctors are doing the best they can and we are praying our best we can .
Please do keep the prayers on, you can save a life.
His sugar levels are still quite high . Insulin is being administered for the same.
Due to the sedation and the dressing on the nose, he could not open his eyes and be fully conscious.
Doctors still don't say he is doing great or fine but they say he is much much better than yesterday and is showing signs of recovery...
His father sounded much better today than he did yesterday when we spoke to him and it was as if he had a renewed sense of energy within him...may god bless them and give them all the strength and courage that is needed to fight this...
We did not have the heart to write that yesterday Rishi was sinking ; but our little warrior is going to fight this and he has an entire army with him, even God cannot refuse.
The doctors are doing the best they can and we are praying our best we can .
Please do keep the prayers on, you can save a life.
Tuesday 4 September 2012
Latest update 4th Sept 2012
Things are not improving as expected. We are extremely worried. Prayers stepped up.
The whole of yesterday went by absolutely fine, until the evening when the nurse noticed some bleeding through Rishi's nose while changing his post-surgery dressing. She called the doctor later in the night, and he rushed in immediately out of his duty hours. Doctor noticed that Rishi is showing signs of hypertension, increased BP and heart rate. Rishi, though was not in pain. He was moved back to the ICU from the general ward.
The doctor and nurse dressed up Rishi's nose and scheduled a CT scan for 4th morning. The CT scan happened over lunch time. The reports show that there is no internal bleeding. The blood that was seen on 3rd while changing the dressing, was of the unhealed wound from the surgery. Due to high level of sugar count, lower immunity, the wound had not healed within 48 hours. It would need more time.
No internal bleeding, no internal injury. No internal clots.
BUT - the anti-fungal medicines have caused a swelling in the brain. Rishi had a epileptic fit during the course of the CT scan. He is unconscious as in time. Doctors call it COMA.
The whole of yesterday went by absolutely fine, until the evening when the nurse noticed some bleeding through Rishi's nose while changing his post-surgery dressing. She called the doctor later in the night, and he rushed in immediately out of his duty hours. Doctor noticed that Rishi is showing signs of hypertension, increased BP and heart rate. Rishi, though was not in pain. He was moved back to the ICU from the general ward.
The doctor and nurse dressed up Rishi's nose and scheduled a CT scan for 4th morning. The CT scan happened over lunch time. The reports show that there is no internal bleeding. The blood that was seen on 3rd while changing the dressing, was of the unhealed wound from the surgery. Due to high level of sugar count, lower immunity, the wound had not healed within 48 hours. It would need more time.
No internal bleeding, no internal injury. No internal clots.
BUT - the anti-fungal medicines have caused a swelling in the brain. Rishi had a epileptic fit during the course of the CT scan. He is unconscious as in time. Doctors call it COMA.
Monday 3 September 2012
Latest update 3rd Sept 2012
Rishi is moved out of ICU and is under observation in general ward (still quarantined, and kept separately)
Doctors said the second half of Sunday was crucial for Rishi;s recovery, that has passed.
The GVH though still needs to come under control. Rishi has been taking GVH and liver count medicine for over an year now, the same ones continue. Anti-fungal injections are already administered.
Doctors are waiting for more tests to be done to see how Rishi is responding to the same.
The tension has reduced considerably but Rishi is still weak, can not sit straight up for long. Rishi also was under some pain last night and could not sleep well but the nurses' helped promptly to look after him.
Rishi's father and mother have lost into a trance. One thing keeps haunting after the other. At the verge of time when they almost thought that the battle this over, this episode of anti-fungal infection increasing through Rishi's optical nerves and scaringly growing towards the brain challenged everybody's faith and hope once again. Undeterred though, and determined to fight, they seek support from almost every visitor that walks in to meet Rishi. Let they be known that we are all with them.. forever.. always!
There are many many more years to go by..!
Doctors said the second half of Sunday was crucial for Rishi;s recovery, that has passed.
The GVH though still needs to come under control. Rishi has been taking GVH and liver count medicine for over an year now, the same ones continue. Anti-fungal injections are already administered.
Doctors are waiting for more tests to be done to see how Rishi is responding to the same.
The tension has reduced considerably but Rishi is still weak, can not sit straight up for long. Rishi also was under some pain last night and could not sleep well but the nurses' helped promptly to look after him.
Rishi's father and mother have lost into a trance. One thing keeps haunting after the other. At the verge of time when they almost thought that the battle this over, this episode of anti-fungal infection increasing through Rishi's optical nerves and scaringly growing towards the brain challenged everybody's faith and hope once again. Undeterred though, and determined to fight, they seek support from almost every visitor that walks in to meet Rishi. Let they be known that we are all with them.. forever.. always!
There are many many more years to go by..!
Sunday 2 September 2012
Latest update 2nd Sept 2012
Rishi had his first semi-solid meal today morning after 4 days
Still, not able to chew, but able to open eyes vividly, can talk softly
As usual, very curious about medical reports and killing inquisitiveness, his mother had to narrate out the entire 4 day summary to him
His response was a surprised smile :)
In marathi he says.. "evadha sagla jhala chaar divsat?!"
("All of this happened in just last 4 days")
Rishi is in ICU, it is still not known for sure when he will be moved to special room
Still, not able to chew, but able to open eyes vividly, can talk softly
As usual, very curious about medical reports and killing inquisitiveness, his mother had to narrate out the entire 4 day summary to him
His response was a surprised smile :)
In marathi he says.. "evadha sagla jhala chaar divsat?!"
("All of this happened in just last 4 days")
Rishi is in ICU, it is still not known for sure when he will be moved to special room
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